No Exercise Friday, I did not have pizza either

This goose was the third wheel, so he was warming up to the statue.

I did not walk yesterday, my free time was spent going to the laundromat and putting my clean clothes away. I did get extra quarters this time so I can do some laundry at my apartment building instead of sitting and waiting around for machines to finish their job. I set my alarm and walk back and forth to the laundry room. It is on the other side of my building so I have to go outside and use a different entrance. Also the public laundromat usually has people that reek of cigarette smoke. Yesterday there was less people there, maybe because it was so windy. My cloth mask blew off in the parking lot. I did have my N95 mask on underneath and no one was nearby.

I am counting down the time, just over a week now, that I can go into thrift stores to look around.

Waiting for more green (in nature and my stimulus check)

Moss and interesting roots at Sapsucker Woods near Ithaca NY

I walked almost an hour today. It took just under an hour. I did stop several times to take some pictures. My main reason for walking was to exercise not sightsee though. I did see a large snapping turtle, several robins, many Canada Geese, and heard loud frogs? My knees were hurting bad before I was halfway through. I can not wait for things to green up more. It was over 70F degrees today and there was still spots of snow in places.

Tomorrow there is high wind warnings and rain forecasted so I should get out my exercise mat and try to do floor exercises. Different ways of getting up are helpful after I fell a few months ago and could not get on my knees to get up because of the pain.

I found this broken turtle shell

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It actually broke when I tried to pick it up. Someone placed it on the bench before I found it. I drove by the other day and it was still there. I think I saw it back in November. The bag of garbage was still there too. I picked up some garbage laying around, but the black bag was in rough terrain and brambles so I could not get to it. I had ticks crawling on my clothes when I got back from that nature walk. It will be a while before I go back, and I will coat myself in tick repellent.

Today the weather was supposed to be bad. I did not go visit my mother because of the predicted “snow storm”. My son emailed me to ask to walk with him at the mall. So I met him there today at noon. That is very early for me to be anywhere. This is the second time we have met there to walk. We did one loop mostly on the main section. We walked slowly because my one-year-old granddaughter walks slower than me…lol.  Afterwards, I bought some groceries. The worst of the weather held off until tonight.

PT is getting to be too much for me

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My little Christmas tree it has the little snoopy mini ornaments my sister gave me, and this year my boyfriend bought me two little elephant decorations…they are so cute. He also got me a larger elephant figurine carved from stone. (that will probably make an appearance in a future post)

I got the boxes out of storage today to put all the Holiday decorations away after I got home from PT. They worked me harder today, I was actually starting to sweat. I am wiped out now. I did not get all the decorations down. I also had an easy dinner of a can of lower sodium soup.

Back This Thing Up

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A pic of my tree 2018 in my new apartment. My favorite part of the tree this year is the light patterns on the wall and ceiling and reflection in the window. I need to figure out how to get electricity on the patio.

I realised after yesterday’s hasty post, that I left out a bunch of events that have happened in recent months. I have a much nicer apartment, which I consider one of the best things to happen to me in 2018. It is still for disabled and seniors only, but this one is much quieter and cleaner than the last one. I have a better layout, no closed in superhot kitchen. I am on the first floor. I have a small patio that I call a catio, though my cat only ventured out there once since I moved in. It has been cold right after I moved here, I think she does not like the cold concrete out on the catio. I have a view of the woods and a bit of the main road. I have seen deer, birds, bunnies and I was told there were squirrels too. I also have seen a wandering cat, I am not sure whose it is, but it looks like a little bobcat. I hope it is not feral. I also hope I never see it dead because it likes to walk in the road.

I have a new primary care doctor, although it is frustrating my old doctor has not faxed over my records.  My blood pressure has been both high and low.  I am back at PT. My PT is only a few blocks away. There is a walking trail nearby, it comes right up to my apartment parking lot. I only walked on the trail once, mostly because it has been rainy, snowy, or otherwise gloomy most days. I walked one day indoors with my older son and grandkids at the mall. The mall will be my go-to option to walk when the weather is too bad to walk outside. I drive my 19-year-old son to work once a week. He lives with my oldest son, so I get to see two of my grandkids more often. I still go to Syracuse most weekends to see my boyfriend. He has actually been here a few times. I still have a lot more to explore in this area.

Just a short while after my grandson’s third birthday, he was diagnosed with type 1 diabetes. I am trying to learn as much as I can about that. I am sure that sums up the last few months. I also planned to squeeze in a few trips to see family. Providence to see my daughter and family including my Ashley who they are taking care of. Dogs her weight are not allowed here. Also up to the Adirondacks to visit my mom and sister. Both of those road trips will be coming soon.

This Year Could Be Epic!

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This pic is of Lights On The Lake near Syracuse, NY. We drove through one night with a free ticket my kids could not use.

It probably will just be the same old same old, unless I put in a little effort. I still have hope in staying positive and making changes for the better. I have been going to PT,  I do not see immediate results except for being tired more often. I hope to be able to walk farther and more often by summer. I can only do just over a mile now. I have also gained so much weight, I weigh the most ever in my life, including at the time of my stroke. It is scary to me to think I have not kept off the weight I lost my first year after. I bought myself an exercise ball again, the next step is inflating it. I am on an austerity spending budget. I will be charging my dental work this year. I have not been to the dentist in years only going once since my stroke to get a tooth pulled.

I am still trying to get used to my awesome apartment. I find more and more that makes it less than perfect, like a visit from a mouse. The doorway I tripped over, and finally took a fall comes to mind.

Hello Old Friends and New

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I am still kicking. I spend way too much time wasting my time, so I am going to try to be more productive. I started this blog, and posted almost daily at first. I was bored and trapped with by my stroke recovery with limited physical energy. I still hit “the wall of fatigue” way too soon, but I can get by most days without a nap now.

I went hiking a week or so ago at Clark’s Reservation NY State Park. That is where I took this photo from. We went on a slightly more difficult trail and I had to have a little help getting up a few rocks. Most normal abled people could do it easily. I even saw some older ladies come in with sandals on. I really should hike more often, I think I weigh the most I ever have now. A yearly pass costs $80 vs paying for parking everytime you stop by. But it does not cost offseason, or when you have their approved disabilities you can get a free pass. Unfortunately, my disability is not on their list…though I might try to go in person to see if I can get one. I think I deserve one because I would write about their parks more than they do…lol.

My boyfriend put my training wheels on my bike, so that will probably be my next form of exercise trying it out…if I don’t fall and injure myself again. If I fall again, I will be so discouraged I will probably let my daughter have my bike and I will buy a tricycle. I am determined to make that bike work for me though, it is so pretty and I can ride on bike trails with the goal to someday ride the whole East Coast bike trail…but not all at once…I will print out a map of it and fill in the sections as I cover them.

I will try to post more often, maybe almost daily.

A Few Personal Words About The #AHCA

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The bill known as #AHCA Trumpdeath, gives tax cuts to wealthy. Why do they even attach anything to a healthcare bill that is not about healthcare?

I had three strokes, my last one at age 47. I have been trying to get back to “normal” for over six years now. I still can not use my left arm or hand much. I have been trying too hard. I am now in so much pain in my left shoulder, I cry out several times per day. Enough about me…I hope to live many more years, now that my high blood pressure was finally brought under control.

Here is someone elses story, copied from facebook, one of millions of stories. In 2015, I was diagnosed with stage IV colon cancer at 26. I am a Baltimore native and I moved home, abandoning the dream job I had been offered in Los Angeles, so that I could receive medical care at Johns Hopkins and be close to my family, on whom I had to lean emotionally and financially.

As a recent law school graduate, I understood the role the SCOTUS decision on the ACA played in my care, as I was still covered under my parents’ insurance for the surgery that saved my life by removing the tumor that was obstructing my colon. I also understood that without that coverage and guaranteed issue, I would not be able to get a new policy when that one expired the following year when I was halfway through my chemotherapy. So the ACA actually saved my life and livelihood TWICE in one year.

After the election, I felt a personal obligation to defend the ACA, or at least its essential provisions. I realized that the same coverage might not be there for the next recent graduate to be diagnosed (70,000 young adults are diagnosed with cancer every year) and that didn’t seem right to me, so I started sharing my story with whoever would listen.

In December, after 6 months of being cancer-free, my cancer returned, this time in my lungs and lymph nodes. Because everything was still small, we didn’t have to treat right away, so I knew I had to use that time to fight harder, both for my family and the families of my fellow survivors and patients, to make sure no one had to suffer financially, as well as emotionally and physically, through cancer. Since then, my family and I have been out protesting, rallying, and sharing our story over and over and over. We joined organizations like the American Cancer Society Cancer Action Network to voice our opposition to the AHCA in solidarity with the cancer community. I told my story, face to face, to nearly every representative Maryland has on Capitol Hill. And yesterday, shortly after the vote, Congressman Cummings told my story on the House floor, expressing the sorrow he felt for me and those in my position watching Republicans celebrate their victory.

I am telling you all this not to ask for your pity or your praise, but to tell you that despite the disappointment I felt yesterday, I am more inspired than ever to fight. Fighting is what cancer patients do best and we know that it comes in rounds. We won the first round, but the AHCA came back more aggressive, so it’s time to gather up our strength and do the work. I don’t know exactly when I will have to scale back on my efforts focus on my treatment, but imagine this fight will be far from over when that happens, so I am calling on you to fight on my behalf.

I’m asking you to join with organizations like the AMA, AARP, American Cancer Society, and the American Hospital Association to oppose this reprehensible bill. Demand town halls and meetings from your reps who voted for it. Organize demonstrations in front of their local offices during the recess. Start calling your Senators today. Speak at town halls and protests. If you know someone who relies on community rating or Medicaid for their care, urge them to tell their story or tell it for them if they can’t. Tell my story if you want.

Orphans

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Let’s hope the GOP do not repeal the ACA and replace with their plan…their plan includes taking away money for handicapped children, allowing raising prices for most, excluding pre-existing conditions, so they can give a tax cut to the wealthy.

It has been raining most days, and it will be most days in the near future. I have not taken any more walks since my walk in the cemetery.

Signs Of Life Among The Dead

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I think this is a redbud tree, or some other flowering tree just starting to spring to life. I took a walk around part of the Oakwood Cemetery in Syracuse last weekend to get some exercise. It is huge, and has many hills. I tried to hike up one hill and slipped in the muddy road…I caught myself several times on the grassy bank next to me. I kept going up, instead of turning around and attempting a different route. It was not my smartest move. I ended up climbing over a downed tree’s branches so I could use those to steady myself to get to the next road. My boyfriend came to see if I needed help, I asked him to pick me up with the car further up the road. After he left, a concerned stranger came to see if I needed help. I should wear a sign, I must look like a crazy drunk person. It was hard to balance with my feet slipping in the mud, I have a hard enough time balancing to walk on a normal straight paved road. I am going to add hiking shoes to my list of must haves before I try that again.

I saw many awesome stone buildings, a pyramid shaped vault, and endless old gravestones and obelisks….there was also the sounds and sights of nature, squirrels, birds, bugs, and many interesting trees and plants. I will be posting a few more pics of there on here in the near future.