A Few Personal Words About The #AHCA

2017-04-23 17.10.22

The bill known as #AHCA Trumpdeath, gives tax cuts to wealthy. Why do they even attach anything to a healthcare bill that is not about healthcare?

I had three strokes, my last one at age 47. I have been trying to get back to “normal” for over six years now. I still can not use my left arm or hand much. I have been trying too hard. I am now in so much pain in my left shoulder, I cry out several times per day. Enough about me…I hope to live many more years, now that my high blood pressure was finally brought under control.

Here is someone elses story, copied from facebook, one of millions of stories. In 2015, I was diagnosed with stage IV colon cancer at 26. I am a Baltimore native and I moved home, abandoning the dream job I had been offered in Los Angeles, so that I could receive medical care at Johns Hopkins and be close to my family, on whom I had to lean emotionally and financially.

As a recent law school graduate, I understood the role the SCOTUS decision on the ACA played in my care, as I was still covered under my parents’ insurance for the surgery that saved my life by removing the tumor that was obstructing my colon. I also understood that without that coverage and guaranteed issue, I would not be able to get a new policy when that one expired the following year when I was halfway through my chemotherapy. So the ACA actually saved my life and livelihood TWICE in one year.

After the election, I felt a personal obligation to defend the ACA, or at least its essential provisions. I realized that the same coverage might not be there for the next recent graduate to be diagnosed (70,000 young adults are diagnosed with cancer every year) and that didn’t seem right to me, so I started sharing my story with whoever would listen.

In December, after 6 months of being cancer-free, my cancer returned, this time in my lungs and lymph nodes. Because everything was still small, we didn’t have to treat right away, so I knew I had to use that time to fight harder, both for my family and the families of my fellow survivors and patients, to make sure no one had to suffer financially, as well as emotionally and physically, through cancer. Since then, my family and I have been out protesting, rallying, and sharing our story over and over and over. We joined organizations like the American Cancer Society Cancer Action Network to voice our opposition to the AHCA in solidarity with the cancer community. I told my story, face to face, to nearly every representative Maryland has on Capitol Hill. And yesterday, shortly after the vote, Congressman Cummings told my story on the House floor, expressing the sorrow he felt for me and those in my position watching Republicans celebrate their victory.

I am telling you all this not to ask for your pity or your praise, but to tell you that despite the disappointment I felt yesterday, I am more inspired than ever to fight. Fighting is what cancer patients do best and we know that it comes in rounds. We won the first round, but the AHCA came back more aggressive, so it’s time to gather up our strength and do the work. I don’t know exactly when I will have to scale back on my efforts focus on my treatment, but imagine this fight will be far from over when that happens, so I am calling on you to fight on my behalf.

I’m asking you to join with organizations like the AMA, AARP, American Cancer Society, and the American Hospital Association to oppose this reprehensible bill. Demand town halls and meetings from your reps who voted for it. Organize demonstrations in front of their local offices during the recess. Start calling your Senators today. Speak at town halls and protests. If you know someone who relies on community rating or Medicaid for their care, urge them to tell their story or tell it for them if they can’t. Tell my story if you want.

Orphans

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Let’s hope the GOP do not repeal the ACA and replace with their plan…their plan includes taking away money for handicapped children, allowing raising prices for most, excluding pre-existing conditions, so they can give a tax cut to the wealthy.

It has been raining most days, and it will be most days in the near future. I have not taken any more walks since my walk in the cemetery.

Signs Of Life Among The Dead

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I think this is a redbud tree, or some other flowering tree just starting to spring to life. I took a walk around part of the Oakwood Cemetery in Syracuse last weekend to get some exercise. It is huge, and has many hills. I tried to hike up one hill and slipped in the muddy road…I caught myself several times on the grassy bank next to me. I kept going up, instead of turning around and attempting a different route. It was not my smartest move. I ended up climbing over a downed tree’s branches so I could use those to steady myself to get to the next road. My boyfriend came to see if I needed help, I asked him to pick me up with the car further up the road. After he left, a concerned stranger came to see if I needed help. I should wear a sign, I must look like a crazy drunk person. It was hard to balance with my feet slipping in the mud, I have a hard enough time balancing to walk on a normal straight paved road. I am going to add hiking shoes to my list of must haves before I try that again.

I saw many awesome stone buildings, a pyramid shaped vault, and endless old gravestones and obelisks….there was also the sounds and sights of nature, squirrels, birds, bugs, and many interesting trees and plants. I will be posting a few more pics of there on here in the near future.

Slow Spring

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Either I am impatient or the trees are taking longer to green up. This pic was taken just a few days ago, while I was in the Adirondacks. There was still snow on the ground in some places!

After a few days visit with my Mom, children and two grandkids I came back to a phone call from my friend letting me know she moved back to this state/area. We went out (group of ladies) to dinner, then some of us went to karaoke. I am now back into my regular schedule.

Walk In The Woods

2017-04-17 16.37.22It looked pretty dead, lots of trees were down. The name of the state owned land was Stone Barn State Forest, so of course I wanted to find the stone barn. I made it over the first downed tree. Ashley made it over as well, her leash did not get caught up. I did not venture much further, in every direction was groups of trees, felled together, too high for me to climb over.

I looked this stone barn up online, I actually read about it before. I naturally forgot about it. I was glad I did actually see it  from the road while driving by. Here is a peek; https://stonebarncastle.me/

Easter for Atheists

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Happy Easter….don’t try to bring any meaning into it. I am not religious, as interesting as all the stories are, I  believe in Science more.

I listed a few items on my Ebay store. My sweetie made some awesome barbeque and I just surfed the web to read all the good and bad going on in the world.

My Favorite Color Electric Blue

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Actually sky blue is my favorite, I just wanted to be punny.  I finally took a long for me walk…meaning over a mile. Our winter has been mild. It has been above freezing often. It has been like a cool summer day or warm spring day in February. Now March has come in like a lamb as well. I fell down a few steps so I didn’t walk as much as I should have this winter. I put on a few more pounds. I am still saving up to buy a bike…so far I have saved $0….oh, well…I bought an unplanned farm share for this year, so I will call that an investment since I will get $50 more value for what I paid. I also had to buy 4  new tires and other car repairs. Now my car is much safer and rides much smoother. Otherwise I have been busy working on my Ebay, I went to the auction last week. I babysat my grandson Monday, so his dad could go to the dentist. I have been taking my youngest son out for driving lessons. I also spend time at my boyfriend’s.

In spite of all the fun and important stuff that I have to take up my time. (and trying to keep up with housecleaning) I have been busy on twitter, trying to stay informed on #theResistance. I can’t wait until dumpster is impeached, resigns, or expires. #resist

Link To My Ebay Store…if it works

I have been gone so long from WordPress, I feel like I need the 101 class again…..I have a new camera. I dropped my other one, too many times, it stopped working.  I will have new and exciting pictures soon…I hope.  I also am trying to step up the Ebay listings to 250…so far I have 44. If this works, here is the link:   sign up to follow my ebay store

Five Years Blogging

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I am so sorry for really going missing in action this year. I have been going out of my mind, trying to get a handle on my anti-Trump facebook postings. I spend way too much time and energy trying to educate people of his many personality disorders that make him unfit to even be considered as a candidate. I have tried very hard to not let it bother me, but I would rather sacrifice my energy now making sure he does not get into office. If any of my followers truly think he is a great guy feel free to unfollow me. My own family might vote for him, and that might explain my deep seated life long mental issues.

So onto the positive things I have done the past few months! I am still with the same boyfriend I met through plenty of fish. I think he is perfect for me. I hope he always feels the same way about me. My two grandchildren are growing up fast. My granddaughter just got back from a family trip to Poland. My grandson is starting to walk around on his own. My granddog is almost a year and has calmed down a little bit, but he is so tall and lanky. He reminds me of Clifford the big red dog, only all black. I spent a weekend visiting my mom, and stopped at a few places on the way home. The pic above I believe was at Raquette Lake, NY. I also drove into Sagamore Camp, but I missed the last tour of the year by a couple hours. I drove down a narrow twisty road out of curiosity to see what the Buttermilk Falls sign was all about, but it could not be viewed from the road. It was raining, so I did not feel like walking down the trail alone. I was unprepared to do any walking as well.

Next month is my last car payment! It has been a long million years paying off a new car loan…lol. I will never do that again, live and learn. I had the car for one year before I had my stroke. Before my stroke, I had to take on a second job or work overtime to pay for the car payment. My plans for the following month are to seriously look at getting myself a bike. I hope it will be a two wheeler, that I can lift onto a car carrier by myself. I don’t mind if I need a special pedal attachment for my one foot to stay on. I am more confident that my affected hand and arm will not get in the way too much, but I will find out.

My garden went neglected once the temps were more than I could bear and the rain barrel went dry from lack of rain. I also saw a large snake…lol. Next year, I will have my container veggies closer to the rain barrel/house and just have my flowers/perennials out where I had my garden. I neglected my whole yard with proper care. My lengths to avoid direct sunlight were met with the arrival of the evening mosquitoes. I did manage to make it all year without a letter from the town telling me my grass was too long. I wonder if that person who complained died or moved away? Anyway, it is ironic to me, since in my opinion my yard has looked the worse condition ever this year…lol. Fuck them, I am the one that has to suffer knowing I own it.  Maybe next year will be my dream of the yard being covered in stones and gardens.